Another one bites the dust... Last Thursday at 6:30am we checked in at Phoenix Children's Surgery center. Callie was put under general anesthesia and Dr. Carroll performed an Endoscopy to check for evidence and a diagnosis of celiac disease.They took a camera down her esophagus scoped and took biopsies from her small intestine. Right after surgery Dr. Carroll came in and talked to us. He was fairly confident she did have Celiac Disease but sent samples to the lab for results. The lab confirmed she does in fact have Celiac Disease. According the the different levels and degrees of celiac disease she is at a level 3-A. (the scale is from 0-3 with 3 being the most severe. level 3 has 3 sub levels A,B or C) I have cried off and on for the past week (and since her original blood work came back with elevated levels a couple months ago) just thinking about it. I struggle with feeling guilt that it's my fault. Even though I did not knowingly give it to her it is a generic trait I passed on to her. I've been thinking about her teens years, socializing/parties/dating with celiac disease. It's going to be rough, it's not something I personally had to deal with as a kid so I can't imagine dealing with it in adolescence. It makes me sad that this is a life long trial she will have. I know she is a strong girl and totally capable of handling it but it's definitely one of those things I wish I could take away from her. But she will have full family support on this and we will move forward with out heads high. I'm grateful that this is a manageable disease. We don't have to go on medications, we don't have to have chemotherapy and hospital visits as long as we maintain a strict diet.
April is just so sweet. Before Callie's appointment she told Ron "I hope her test comes back saying she can have gluten" That little girl amazes me day after day with her empathetic abilities. She knows it's not an easy thing to be GF but she does usually have a positive attitude about it. I do like that they will at least have each other to lean on through this ordeal. Girl GF Power all the way.
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